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#PatientsAreNotFaking Is Taking on the Social Media   

#PatientsAreNotFaking Is Taking on the Social Media    | Social Media and Healthcare | Scoop.it

What exactly are patients “not faking”? 

 

Over the past couple of days, the hashtag #PatientsAreNotFaking has been trending on Twitter. “Not faking” belief that our current healthcare system is somehow working well? Nah, no one should really believe that.

 

No, instead, the hashtag is actually the start of a sentence that was meant to conclude with, “their symptoms and medical problems,” or something similar to this phrase. Yes, many patients around the country have encountered doctors and other healthcare professionals who have either ignored or discounted their symptoms that in many cases turned out to be signs of serious underlying medical conditions.

 

For example, movie and television star Selma Blair suffered “not being taken seriously by doctors” for years before finally being diagnosed with MS. And Blair is a well-known celebrity. Imagine what those who feel ignored in general and don’t have resources have to suffer.

 

Such delays in diagnosis can not only prolong suffering and confusion but also put patients at serious risk for missing treatment opportunities.

 

These were just some of the heart-wrenching stories that emerged from the hashtag. 

 

Sure, walking into the emergency room with your arm falling off may typically get attention. But studies have shown that many doctors and other healthcare professionals aren’t doing great jobs at listening to people. For example, a study that I covered before for Forbes showed how doctors on average interrupt patients after only 11 seconds. That’s barely enough time to release and recover from an extended fart let alone listen to a patient’s complaints thoughtfully.

 

Certainly, some doctors and health professionals are naturally too quick to judge patients, relying on stereotypes and pre-conceived notions. 

 

For example, I once heard a doctor claim that a young Asian American patient was probably tired because he was studying too much, without knowing much about the patient. The doctor was not Asian American and to my knowledge still isn’t. It turned out that the patient had a thyroid condition and really didn’t study very much.

 

Stereotypes, sexism, racism, ageism, body type-ism, and other -isms can prevent people especially women, racial and ethnic minorities, those of various sexual orientations, and those of certain body types (e.g., those with obesity) from having their concerns being taken seriously.

 

Certainly, some patients may be exaggerating symptoms or even faking them. Indeed, there are reasons why certain patients may do this such as to get attention or to get healthcare professionals to do something. If you have worked in healthcare long enough, you will encounter such patients.

 

Nonetheless, as the response to the #PatientsAreNotFaking demonstrated, there are many, many, many, many more patients who do not fake or exaggerate their symptoms but rightfully feel ignored. In fact, you’d expect the vast, vast majority of patients to not be faking or exaggerating anything.

 

After all, why would they take time out of their busy schedules to see a doctor in a clinic, a hospital, or an emergency room, places that are neither “fun” nor free places to be?

 

Read More: https://www.forbes.com/sites/brucelee/2019/11/24/why-patientsarenotfaking-began-and-what-is-says-about-health-care/#454a28773452

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Social Media and Patient Advocacy via @nrip

An advocate is a “supporter, believer, sponsor, promoter, campaigner, backer, or spokesperson.Social media is not an activity it's a strategy. Using this strategy with Patient advocacy is what this talk by Nrip Nihalani is about
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Pinterest, Tumblr, Instagram are now Guides to Mental Well-being 

Pinterest, Tumblr, Instagram are now Guides to Mental Well-being  | Social Media and Healthcare | Scoop.it

People with serious mental illness face barriers to mental health treatment and are often reluctant to seek professional help.

 

Especially, if they have a co-occurring disorder, meaning they may struggle with any combination of addiction, depression, anxiety, PTSD, etc., according to Buivydas.

 

“Many people are instead seeking support and information regarding their illness via the internet, especially on social media,” he says.

 

Pinterest, a well-known social network where people can find inspiration and ideas for interests and hobbies, made a move to remove posts related to self-harm. As a result, user reports on that type of content decreased by 88%.

 

Pinterest also launched a feature called “compassionate search” where users can combat stress and anxiety through healthy journaling and meditation. Additionally, when a user searches for the tag “self-harm” or anything similar, it leads them to healthy they’ll find 10 new coping exercises that can help them work through difficult emotions and feelings.

 

Similarly, back in April 2018, Instagram tackled their growing issue of drug-related hashtags.

 

Users were using hashtags like #opiates, #fentanyl, #oxycontin, and more to sell drugs. After mounting pressure from the FDA, senators and health advocates, Instagram removed those hashtags and any post or message related to those hashtags.

 

"Today, social media is the biggest outlet for people to seek support groups and like-minded individuals. But, sometimes those ‘support groups’ and like-minded people are doing more harm than good."

 

“These individuals may have conditions that can affect their ability to actively participate in their communities and/or build positive social relationships. Social media allows people with and without disabilities to connect with friends and family who are near and far. People struggling with serious mental illness can use social media to communicate with friends, find peer support, or receive health-related information. Indeed, social media can also support people with severe mental illness and their care teams as a positively oriented tool to find support and connect with events and opportunities in their community.”

 

Read More: https://www.managedhealthcareexecutive.com/news/social-networks-move-behavioral-health

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