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Facebook to now help to beat Breast Cancer 

Facebook to now help to beat Breast Cancer  | Social Media and Healthcare | Scoop.it

Social media bombards users with memes, cat videos and political squabbles. 

 

For thousands of women facing an aggressive form of breast cancer, Facebook recently brought another, less common offering: hope

 

“We were having a really, really difficult time finding patients,” said Casey Bales, project manager for triple-negative breast cancer research at the IU School of Medicine. 

 

She coordinates clinical trials – studies in which patients receive drugs or other treatments to try to understand their effects on health outcomes.

 

The breast cancer trial, begun in 2014, wasn't going well. Three years into the study, less than 40% of the patients needed were enrolled. 

 

“The trial was in jeopardy,” Bales said last week.

 

It was saved in 2017 when Facebook posts from the Vera Bradley Foundation for Breast Cancer and IU researchers about a trial using genomics – the study of genes and their functions – to find weaknesses in cancer tumors appeared.

 

Indiana University researchers and the Vera Bradley Foundation for Breast Cancer used the popular networking website and Instagram to recruit participants for a clinical trial. The first-of-its-kind social media effort jump-started a once-moribund effort that led to a Dec. 13 announcement that doctors say could save the lives of patients with triple-negative breast cancer. 

 

Recruiting through social media has become an important tool for physicians and medical researchers, who can sometimes have difficulty finding patients with specific forms of diseases they are trying to study. 

 

“We are implementing social media efforts pretty much on every new trial,” Bales said.

 

“Social media gives us an opportunity to leverage communities and resources to interact with a much broader community than we've been able to reach before,” the report said. 

 

Lisa Hayes is a survivor. 

 

The 62-year-old Indianapolis woman was diagnosed 12 years ago with triple-negative breast cancer. 

 

“I didn't even know (at the time) there were different kinds of breast cancer,” she said in an interview last week. “I just thought breast cancer was breast cancer. That's a scary feeling, to know you had a very aggressive kind of breast cancer.”

 

Hayes endured surgery to remove cancer, eight rounds of chemotherapy and 33 rounds of radiation. She now leads R.E.D. Alliance, an advocacy group working to reduce late-stage diagnosis and death rates for black women with cancer. R.E.D. stands for Reaching to End Disparities.

 

Her cancer is gone, but Hayes has wondered whether it might come back. She did not participate in the recent clinical trial but said the research is important to her and other survivors. 

 

“It's great news to hear what they have done,” she said. “It gives hope and promise to everyone coming behind me. It's very personal to me, in that respect.”

 

Read More: https://www.journalgazette.net/news/local/20191222/facebook-helps-clinical-trials-for-iu-vera-bradley

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TikTok is now being used to combat health misinformation and it's working!

TikTok is now being used to combat health misinformation and it's working! | Social Media and Healthcare | Scoop.it

Dr. Rose Marie Leslie is hoping to reach teens with a message about the dangers of e-cigarettes. So she’s started posting regularly on TikTok, the popular short video app, and has collected a large following.

 

Leslie, who goes by @DrLeslie and is a family medicine doctor at the University of Minnesota Medical School, has amassed more than 300,000 followers on the platform in recent months. Most of her TikTok videos offer insights on health issues that impact teens, ranging from how to talk to doctors about birth control to why it’s a bad idea for a group of friends to share a lollipop.

 

She’s best known for getting real about vaping and vaping-related illness. The issue is more urgent than ever for many parents, with surveys showing that vape use at an all-time high among teens amid an outbreak of a life-threatening vaping illness. 

 

Part of the problem, according to medical experts, is the teens aren’t aware of the risks because public health organizations aren’t communicating with them on the platforms they use.

 

That’s where Leslie comes in.

 

Leslie doesn’t talk down to the viewer, but instead shows side-by-side images of a vaping-related lung injury and a normal lung biopsy, and discusses the root causes.

 

In one video, she shows her followers what vaping lung illness really looks like under a microscope. “That is terrifying,” she says in the video.

 

Leslie says she gets a lot of messages from teens who have stopped vaping because they watched one of her videos.

 

“I expected it as a primary-care doctor who’s often talking to teens about the health risks associated with something like vaping that’s perceived as cool,” she said.

 

Greater engagement on TikTok than other platforms

 

Leslie is just one of the doctors who have recently started popping up on TikTok. Far more physicians are on Twitter and Instagram, which are more popular with older generations.

 

But those who have taken the TikToK plunge say they are experiencing far greater engagement on content there than on other social media platforms.

 

Jefferson Health’s Dr. Austin Chiang, one of the most active physicians on social media, recently joined TikTok after reading about how it’s taking off. 

 

Chiang uses TikTok primarily as a platform to talk to other young doctors about issues that matter to them, like the cost of medical education or the sacrifice of giving up their 20s to spend nights and weekends in the hospital.

 

Chiang says he already sees the most engagement on TikTok, which is used by more than 700 million people daily, according to its owner ByteDance.

 

Chiang and Leslie are also using TikTok to combat health misinformation.

 

“I’ve heard the criticism that doctors and other medical professionals on social media are somehow less credible, or won’t be taken as seriously by their peers,” said Sherry Pagoto, a behavioral scientist and professor at the Department of Allied Health Sciences at the University of Connecticut. “But I think that school of thought is going to be a thing of the past.”

 

Pagoto notes that medical experts need to meet teens where they are, rather than sticking to the older methods of advertising on television or Facebook.

 

“It would be great for public health organizations to follow the lead of these medical professionals on TikTok,” she said.

 

Read More: https://www.cnbc.com/2019/11/29/doctors-use-tiktok-to-talk-to-teens-about-vaping-birth-control.html

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Healthcare Media: Review 2019

Healthcare Media: Review 2019 | Social Media and Healthcare | Scoop.it

''Media” has long been part of our moniker here at MM&M – it is, quite literally, the third M of a brand that started its life and remains, at its heart, Medical Marketing and Media – but 2019 marked the first year in quite some time that we attempted to cover it on more than a semi-regular basis.

 

Frankly, we picked a fortunate time to start, given the flood of transformative news during the year.

 

But don’t take our word for it. For the final Third M dispatch, before we change calendars, MM&M asked several of the smartest folks in and around health media to answer a few questions about the people and trends that stood out during 2019. Their responses did not disappoint.

 

Here’s hoping for a similarly scintillating 2020.

 

What was the most important, most welcome, weirdest, coolest or otherwise most interesting trend or event in health media during 2019, and why?

The physicians who embraced TikTok. There are about 20 doctors (as well as residents and medical students) who are using the popular video platform to share health information. What I find jarring is the juxtaposition of medical topics with the informal nature of the videos. However, I am far from the Gen-Z audience that makes up a significant portion of the TikTok demographic.

 

“The value of the platform for health education was highlighted by Dr. Rose Marie Leslie in September when she created a video on the dangers of vaping. It amassed millions of views and led to mainstream media attention from ABC News, among others. Clearly these physicians are doing something right because many of them have gained tens of thousands of followers on TikTok. We’ll be watching.” – Eileen O’Brien, managing director, social media, W2O

 

“Authenticity. From UX design to chatbots, the bar for creating an authentic experience for the consumer has been elevated this year. Authenticity in 2019 evolved beyond the selection of a credible spokesperson for messaging—it’s about infusing it into every brand attribute, using a variety of elements (e.g., voice and visuals) to create an inimitable and trustworthy consumer experience.” – Tabytha Gil, linguistic insights analyst, Ogilvy Health

 

“The rise of voice search, which essentially means two things. First, with respect to the voice search queries input via your mobile phone or tablet: There are a variety of different statistics out there, but most analysts estimate that approximately 30% to 55% of all U.S. search traffic is being driven by voice search at the moment. This means that both your SEO and SEM strategies need to evolve. This is especially so for health, as voice search is already prompting many more long-tail keywords. The specificity of these keywords is an important point to note, with patients more likely to speak complicated clinical search terms rather than trying to type them.

 

“Second, there is an entirely different type of voice search playing out across AI-powered smart speakers, like Amazon’s Echo or Show, or the Google Home and Nest Hub. In these scenarios, particularly when there is zero UI or no screen, how can a brand take advantage of voice-driven search queries? One can easily envision this working in an unbranded example, but the billion-dollar question is how can branded search results populate in a compliant manner? The entire voice search economy will be a fascinating one to watch in 2020, but make no mistake: Both Amazon and Google are hard at work figuring out a way to monetize this smart search inventory.” – Justin Chase, EVP, innovation, and media, Intouch Solutions

 

“The focus on awareness, education, and support around mental health, from organizational, partnership and consumer perspectives. Second, patient influencers and advocates are driving health actions, and brands started to notice. As for the coolest event in 2019, Healthline Media partnered with wellness advocate Nitika Chopra to create Chronicon, bringing together hundreds of influencers to the first daylong event devoted to people struggling with chronic health issues.” – Ingrid Eberly, VP corporate marketing, Healthline Media

 

Read More: https://www.mmm-online.com/home/channel/media-news/health-media-2019-the-year-in-review/

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Social Media Do's and Don'ts for Medical Practices

Social Media Do's and Don'ts for Medical Practices | Social Media and Healthcare | Scoop.it

Patients have come to expect unprecedented access to their physicians, especially through technology-based means; a large part of that is social media. However, many physicians are leery of wading into uncharted waters that have the potential to open them up to legal risk and possibly blemish their reputation. Yet refusing to embrace social media could ultimately harm your practice. Younger tech-savvy patients expect to see their physicians online. If they don't, they may choose to leave your practice for one that has a more robust online presence.

Pediatrician Wendy Sue Swanson, aka Seattle Mama Doc, started blogging for Seattle Children's Hospital five years ago in response to the media frenzy over the MMR vaccine. She realized that she had limited time in the exam room to educate her patients and their families. "To me it seemed that I was not going to be the pediatrician and advocate that I wanted to be if I continued to stay just in the exam room," says Swanson.

Through blogging, expanding her role on Facebook and Twitter (@SeattleMamaDoc), and utilizing other platforms like health advocacy and public speaking, Swanson now has 25,000 followers on Twitter. But she says that number is really not important. "You can have 24,000 followers or 24 followers, but if the 24 followers are the right followers — people who need your advice — then that's really good."

So take heart, you can begin with little steps. Here's what our experts say you should know about "getting social."

WHY SHOULD YOU USE SOCIAL MEDIA?

One of the best reasons for using social media is that you can reach your patients where they are increasingly active — online. Smartphones and other mobile devices are ubiquitous, and, in one sense, just a more sophisticated vehicle for word-of-mouth marketing. Patients continue to ask each other for the name of a good pediatrician or family doctor, but now they are doing that online.

Customer engagement is an important part of any business. Founder of practice-management consulting firm Physicians Practice Expert, Audrey "Christie" McLaughlin says practices that establish a presence on social media are connecting with their patients and the local community in ways that will position them as the go-to experts in the field. She adds this goes a long way to building the first steps to patient engagement: cultivating the "like, know, and trust factors" with a physician. 

Pediatrician Natasha Burgert makes liberal use of social media tools in her group practice, Pediatric Associates, a 13-provider medical practice in Kansas City, Mo. In addition to seeing patients full time, she is also the "social media community manager" for her practice. She says patients most often find out about her practice's social media accounts through word of mouth. "Moms talk to moms and they let [each other] know information is available. During the clinic visit I will tell them 'If you want to find out more, just follow us on Facebook, or you need to follow [my] blog,'" says Burgert.

Burgert says her patients' parents have come to trust the information they get from the practice's Facebook page or her personal blog, KCKidsDoc.com. In fact, the impetus for starting a practice social-media channel was the H1N1 epidemic in 2009. Burgert says her practice was being inundated with phone calls from panicked parents. They created a practice Facebook page where Burgert posted daily updates; when patients called, they were directed to Facebook.

SOCIAL MEDIA DO'S

Once you decide to plunge into social media, make sure you develop a plan. As with any worthwhile endeavor, it helps to have a playbook. Here are several factors you should consider first:

• Identify your goals. The first step to creating an online presence should be to define your social media goals as a practice. Julie Song, patient safety risk manager for medical malpractice insurer The Doctor's Company, says it is a mistake to lightly enter into the social media arena. She cautions against creating a Facebook or Twitter account because all the other groups in your community are doing so. "Determine what would be the best medium to portray your practice to the intended audience," Song says.

• Find your ideal patient. When working with practices, McLaughlin asks them to identify their "ideal" patient; the group of people your practice wants to speak to in its marketing and social media efforts. That has a lot to do with the type of social media channel that you choose. Burgert suggests that physicians register with Google+ and also create a profile on LinkedIn and Doximity. McLaughlin says Instagram and Pinterest are also good options for some practices.

• Make it fun. Make the learning process fun to remove some of the perceived drudgery of yet more administrative work. Swanson suggests starting a personal Facebook page around a hobby or family activity. She says using the social media tool in a "low-risk environment" will make it easier to learn the ropes, before you apply your new skills to your medical practice.

• Set a time commitment. Another hurdle that practices worry about is the time commitment they will have to make to their social media efforts. Busy physicians barely have time to see patients, let alone contribute to social media platforms on a regular basis. Burgert recommends finding that "one voice" to be responsible for posting to all social media platforms (with backup, of course, in the case of emergencies).

• Partner with staff. An acceptable alternative to doing it yourself is to identify that one staffer who has an interest and the skill set to represent your practice online. Swanson says she knows from personal experience how hard it is to treat patients full time and manage a social media presence. She says a physician can partner with staff members in the practice to share relevant, thought-provoking, or educational material that they can then disseminate to patients online.

• Decide how often you'll post. Burgert says she likes to post to Facebook at least twice a day. Twitter is much more "live-time, interactive," she says, so she posts when she is on the site, throughout the day. McLaughlin recommends practices post seven times to 10 times a week to Facebook, until they get a better idea of what their followers want and like. She suggests using Facebook Insights (a free data analytics tool) to dig into the data. That way you'll know when your people are online.

SOCIAL MEDIA DON'TS

Many physicians are unreasonably afraid of establishing a social media presence online, says McLaughlin: "Really, I think a lot of the fear is hyped up." As long as physicians keep common-sense tenets in mind, like not posting protected health information (PHI), she says they'll be fine.

However, there are a few social media pitfalls that physicians should be on the lookout for. Here are some things to be mindful of:

• Guard against HIPAA violations. It is important to protect your practice and patients against HIPAA violations. The best way to do this, says Song, is to have a HIPAA policy in place and to train your staff members on its execution. She advises that only HIPAA-trained staff members should engage with the public through social media. And to be thorough, your "office policy should dictate that staff are not to comment about patients or office-related matters on their personal social media accounts," says Song.

• Don't blur professional and personal profiles. Illinois-based healthcare attorney Ericka L. Adler says physicians should never combine personal and professional social media accounts. They should be kept strictly separate. She also advises against "friending" patients on a physician's personal Facebook page. "Patients don't need to see pictures of you partying to all hours of the night, or whatever it is," Adler says.

• Never give specific medical advice online. "I do not doctor online. I'm not sharing health information. I'm not sharing things that contain PHI without families' permission," says Burgert, of her social media platforms. She says only two of her patients have ever asked her personal health questions online. If they do, it is best to direct patients to call the office if they wish to speak with a physician.

• Don't acknowledge a physician-patient relationship. Another pitfall that physicians need to be aware of is acknowledging online that a person is their patient. Adler says that "simply acknowledging that somebody is your particular patient can create a HIPAA issue." If you are responding to a compliment about your practice, for instance, be neutral says Adler — you can say something like, "Thank you for your kind words."

In some cases, having a discussion with someone online could establish a patient-physician relationship where there is none, says Song. "Many practices do not realize that social media can create confusion about when the patient-physician relationship was established," she says.



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