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#PatientsAreNotFaking Is Taking on the Social Media   

#PatientsAreNotFaking Is Taking on the Social Media    | Social Media and Healthcare | Scoop.it

What exactly are patients “not faking”? 

 

Over the past couple of days, the hashtag #PatientsAreNotFaking has been trending on Twitter. “Not faking” belief that our current healthcare system is somehow working well? Nah, no one should really believe that.

 

No, instead, the hashtag is actually the start of a sentence that was meant to conclude with, “their symptoms and medical problems,” or something similar to this phrase. Yes, many patients around the country have encountered doctors and other healthcare professionals who have either ignored or discounted their symptoms that in many cases turned out to be signs of serious underlying medical conditions.

 

For example, movie and television star Selma Blair suffered “not being taken seriously by doctors” for years before finally being diagnosed with MS. And Blair is a well-known celebrity. Imagine what those who feel ignored in general and don’t have resources have to suffer.

 

Such delays in diagnosis can not only prolong suffering and confusion but also put patients at serious risk for missing treatment opportunities.

 

These were just some of the heart-wrenching stories that emerged from the hashtag. 

 

Sure, walking into the emergency room with your arm falling off may typically get attention. But studies have shown that many doctors and other healthcare professionals aren’t doing great jobs at listening to people. For example, a study that I covered before for Forbes showed how doctors on average interrupt patients after only 11 seconds. That’s barely enough time to release and recover from an extended fart let alone listen to a patient’s complaints thoughtfully.

 

Certainly, some doctors and health professionals are naturally too quick to judge patients, relying on stereotypes and pre-conceived notions. 

 

For example, I once heard a doctor claim that a young Asian American patient was probably tired because he was studying too much, without knowing much about the patient. The doctor was not Asian American and to my knowledge still isn’t. It turned out that the patient had a thyroid condition and really didn’t study very much.

 

Stereotypes, sexism, racism, ageism, body type-ism, and other -isms can prevent people especially women, racial and ethnic minorities, those of various sexual orientations, and those of certain body types (e.g., those with obesity) from having their concerns being taken seriously.

 

Certainly, some patients may be exaggerating symptoms or even faking them. Indeed, there are reasons why certain patients may do this such as to get attention or to get healthcare professionals to do something. If you have worked in healthcare long enough, you will encounter such patients.

 

Nonetheless, as the response to the #PatientsAreNotFaking demonstrated, there are many, many, many, many more patients who do not fake or exaggerate their symptoms but rightfully feel ignored. In fact, you’d expect the vast, vast majority of patients to not be faking or exaggerating anything.

 

After all, why would they take time out of their busy schedules to see a doctor in a clinic, a hospital, or an emergency room, places that are neither “fun” nor free places to be?

 

Read More: https://www.forbes.com/sites/brucelee/2019/11/24/why-patientsarenotfaking-began-and-what-is-says-about-health-care/#454a28773452

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Rescooped by nrip from healthcare technology
Scoop.it!

Social Media Can Boost Disease Outbreak Monitoring, Study Finds

Social Media Can Boost Disease Outbreak Monitoring, Study Finds | Social Media and Healthcare | Scoop.it

Monitoring social media websites like Twitter could help health officials and providers identify in real time severe medical outbreaks, allowing them to more efficiently direct resources and curb the spread of disease, according to a San Diego State University studypublished last month in the Journal of Medical Internet Research,Medical News Today reports.


Study Details


For the study, lead researcher and San Diego State University geography professor Ming-Hsiang Tsou and his team used a program to monitor tweets that originated within a 17-mile radius of 11 cities. The program recorded details of tweets containing the words "flu" or "influenza," including:


  • Origin;
  • Username;
  • Whether the tweet was an original or a retweet; and
  • Any links to websites in the tweet.


Researchers then compared their findings with regional data based on CDC's definition of influenza-like illness.

The program recorded data on 161,821 tweets that included the word "flu" and 6,174 tweets that included the word "influenza" between June 2012 and the beginning of December 2012.


According to the study, nine of the 11 cities exhibited a statistically significant correlation between an uptick in the number of tweets mentioning the keywords and regional outbreak reports. In five of the cities -- Denver, Fort Worth, Jacksonville, San Diego and Seattle -- the algorithm noted the outbreaks sooner than regional reports.

Drew Hodges's curator insight, February 19, 2015 5:50 PM

This is a cool article to show the real life change that social media is creating. Before it was stated that it would take up to two weeks to detect an outbreak of a disease but now with social media it can be done in a day. 

This article really shows how social media is becoming a part of our everyday life and is taking on roles that we probably didn't expect it to. 

However with the number of users increasing it is important to have tools that help us monitor the large amount of data that is present. 

Its no good having all this information if we cannot harness it's true potential, like the one illustrated in this article for disease break out.

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